Comeback Corner: Our Journey with Epilepsy

March 1, 2023, started like any other day in our household. The sun peeked through the curtains as my younger son, full of his usual morning energy, jumped out of bed and headed straight for his favorite spot in the living room to catch up on his favorite YouTube videos. Little did we know, our world was about to change forever.

As we sat nearby, sipping our morning coffee and starting our days, a haunting, rhythmic knocking sound echoed throughout the house. Rushing to investigate, we found our son convulsing uncontrollably on the floor with his head hitting a wall. He was caught in the grip of a tonic-clonic (also known as grand mal) seizure. Panic set in, and we dialed 911, praying for help as we watched helplessly.

From Normalcy to Epilepsy

This was just the beginning of our journey into the world of epilepsy. Little did we know how much our lives would change from that moment on. That was his first seizure, but unfortunately, not his last. Sadly, it’s gotten to the point that we have seen some of the same EMTs and ER staff more than once in the last year. We never imagined epilepsy would become such a significant part of our lives.

Epilepsy is a complex condition that is often not well understood by most people. Our family was unexpectedly thrown into this unfamiliar world…